RESEARCH

Related Projects


Building the Medical Information Commons (R01 HG008918)

Read about the initiative to collect and share data on a large scale for research and clinical use. Collectively, these efforts may lead to the creation of a medical information commons.

https://www.bcm.edu/academic-centers/medical-ethics-and-health-policy/research/elsi-genomics-research/information-commons
PoliSeq: Integrating Next Generation Sequencing into Clinical Decision-Making (R01 HG006460)

Read about the clinical integration of the next generation sequencing (NGS). NGS has introduced new challenging policy concerns such as oversight of test quality and services, patenting and licensing issues, privacy and data sharing, and insurance coverage and reimbursement.

https://www.bcm.edu/academic-centers/medical-ethics-and-health-policy/research/elsi-genomics-research/ngs-policy-analysis
Canadian Network for Learning Healthcare Systems and Cost-Effective ‘Omics Innovation (CLEO)

Read about how the CLEO Net is informing and designing a learning healthcare system that turns genomic knowledge into sustainable cancer care and producing advanced research that benefits all Canadians.

https://www.genomecanada.ca/en/canadian-network-learning-healthcare-systems-and-cost-effective-omics-innovation-cleo
The Light Collective

Read about the light collective whose mission is: “We are a nonprofit on a mission to help peer, support groups, foster healthy human connections on the internet. We provide tools, resources, and training for patient peer support group leaders to practice collective self-governance, negotiate fair partnerships, and foster good moderation + cyber hygiene practices.”

https://lightcollective.org/