Importance of the Sulston Project

About John Sulston Project Narrative Project Aims Modified Policy Delphi Importance

This project is urgent and significant because the clinical and scientific stakes are very high: people facing agonizing decisions about management of inherited cancer risk must have access to reliable genomic information. Additional impact will come from using these results to help design future genomic commons. This project is innovative in its use of mixed methods, incorporating a Delphi framework into a policy-committee structure, and its explicit attention to policy translation and engagement. It will be feasible, as demonstrated by the productivity of this team in prior work, our experience with the methods and knowledge about the existing elements of a commons, and the combination of theory and empirical social science we will employ.