Project Narrative

About John Sulston Project Narrative Project Aims Modified Policy Delphi Importance

The nascent knowledge commons for interpreting genomic variants regarding inherited cancer risk is essential to advancing science and improving clinical care. This study will carefully examine the challenges of developing a sustainable commons for inherited cancer-risk variants and generate policy solutions for challenges identified as most important and feasible to address by engaging expert stakeholders and relevant constituencies, including: data contributors and end-users, data generators, data sources, data facilitators, and professional data users. It will then present findings and policy options to audiences that can act on them.